For weeks we have been waiting to hear from the Cardiologist in Philly. They are really great there. I am so glad that we were referred to them. I loved dealing with them. They finally got back to me about Bailey. I am confidant that everything is going as planned. As I was telling my family, I was very happy that despite everything what really gets me is the unknown. When Bailey was born, we were told he would not live past his first few days. But when he survived that, they said that he would get to about three months, then his oxygen levels would drop and that would indicate the need for his first open-heart surgery, the Glenn Shunt. Like clock work, that is what happened. After his first surgery, they told us that he would again dip in his oxygen levels and that he would be around three years of age, the dip would signify the need for his second surgery, the Fontan. Again, like clock work, that is how it happened.
I guess we were always prepared for complications to come when he was a teenager because that is what they prepared us for, but here he is at 10 and apparently has been in diastolic dysfunction since he was about 6. No complications since he was three and then this. It sent me spinning. But that's all I am going to say about that because I will end up crying again...and I don't want to do that. I don't want to go there. I just want to remain optimistic for him.
I have been having a hard time with the fact that my husband is deploying soon. I guess with everything going on I just want my husband here. I want him home with me. I know I am facing quite a few sleepless nights.
Oh here's a good vent. Okay, so a few months ago I entered a contest. It asked us to nominate someone in the service who we thought deserved a 50 inch plasma television. I nominated Ed and said that he deserved to have something of his own after all the sacrifices he makes for the family and for the country. The president e-mails me and says that Ed won the grand prize. YAY! Not! He comes all the way over here and because we live with my mom and have gifts for my son , we are no longer qualified. He wanted to give it to someone who needed it more. Basically I was okay. I just felt like he made me feel like an ass, like I was being greedy. It didn't say that there were any guidelines. I didn't even think we'd win. Anyway, I broke no rules. I thought the whole things was handled poorly by www.EvoHT.com. I was going through enough with getting Ed ready to ship off and dealing with Bailey's condition (which I had just told them about). It was dumb.
Anyway, life goes on and that is what has been happening on my side of the computer....Have a great week.
